Category Archives: Uncategorized
The longer I take to post updates, the more there is to report. Unfortunately, the great majority of that is bad news. Pembro and Pomalyst have not proved to be a winning combination, nor does the current replacement (as of … Continue reading
That didn’t last very long. Empliciti and Revlimid have been given the heave-ho, even before my latest full tests of December 28 showed an M-spike risen to 2.3, and an IGG level of 2690 (way above normal). My joints are … Continue reading
November 3 was the last of eight consecutive weekly infusions of Empliciti (always with eight mgs of dex) and the result so far is…nil. My M-spike was 0.8 g/dL when measured before I began the chemo in early September, and … Continue reading
Oh, and I’m fundraising for myeloma research again. Please click here to donate, with my thanks.
Since the Kyprolis trial went bust last year, I’ve been: hospitalized for kidney failure complicated by pneumonia (early in Dec ’15), which heavy chemo finally beat down, then on Selinexor pills (which did little but make me more nauseous than … Continue reading
My myeloma essay “Never Happier” (a condensed version of a much longer piece) is now online at Apiary Magazine, under the auspices of their recently redesigned site. Thanks, Apiary, for looking out for Philadelphia writers.
In the autumn of 2014, my M-spike and related protein numbers began creeping up, even after switching from nightly oral doses of Revlimid/dex to Pomalyst/dex. So in late November, my oncologist persuaded me to enter a clinical trial involving experimental … Continue reading
Amazon today sent me a royalty check for the short story I placed in their Kindle Store, mostly as an experiment, some while back. A three-figure royalty check! Never mind the decimal point between the first and second figures. Yes, … Continue reading
One of my pics made The Inquirer’s Talk section today (online). You’ll have to scroll down a bit through the “Snow Day!” gallery: http://data.inquirer.com/thetalk/
I thought it time for another one of my occasional posts…this one specifically for anyone in the Philadelphia area who may be recently diagnosed with myeloma, or who knows someone (closely, not-so-closely) with myeloma. The Philadelphia Multiple Myeloma Networking Group … Continue reading